Following the success of the first IPF Patient Day in 2012, a full-day conference was held on 13th July at City Hospital in Nottingham, supported by the Pulmonary Fibrosis Foundation from the US. It was again a great success with over 100 patients and family members attending. A wide range of topics was covered, presented by interstitial lung disease specialists from across the UK and family members with experience of caring for IPF patients.
• IPF NICE Guidelines
• IPF - What is it?
• Update on treatments
• Personal Experience of caring for an IPF patient
• Two new national charities were announced
The Pulmonary Fibrosis Trust, which focuses on providing financial support and equipment for patients.
Action for Pulmonary Fibrosis which aims to promote widely the issues relating to the disease; support the establishment of more regional support groups; and to raise funds for research into new treatments and an understanding of the cause.